Sherry Cagan

Stand4Lyme Foundation

 President  &Founder 

November 2015


Co-Founder Bay Area Lyme Foundation

December 2011



8/27/16

Sherry Cagan's Bio


“ I work hard to help accelerate a cure for Lyme disease out of necessity for my children, myself and the millions who have experienced the hardship associated with Lyme as all deserve a chance at the life they dream and this is possible with research and our help.” - Sherry Cagan


Sherry Cagan founded Stand4Lyme Foundation; a Silicon Valley based 501(c)(3) volunteer organization, late 2015, creating a new research approach capable of making significant medical advances for Lyme disease. By funding and pooling the interdisciplinary expertise of a collaborative team of scientists and expediting the most promising projects to patients, Stand4Lyme’s revolutionary Lyme research platform holds great promise to accelerating a cure for Lyme disease. Sherry initiated and has partnered with the Stanford Lyme Working Group, which includes collaborations at other leading institutions, such as Johns Hopkins, Harvard, Columbia and Duke, all who share her urgency to pave a medical path to wellness for patients at all stages of Lyme disease and help end prolonged suffering of millions.


Sherry has hosted and chaired a number of Lyme fundraising events at her home (2013-2016), volunteering tirelessly, she has helped raise $2.5 million for Lyme disease research as of May 2016, the launch of Stand4Lyme’s new Lyme research platform. Prior, Sherry was a founding member of Bay Area Lyme Foundation, were she was heavily involved for 4 years. The catalyst for her commitment draws from her personal near death experience and her daughters’ daily challenges with Lyme disease. She has been working closely with the scientists at Stanford and around the world since her Lyme diagnosis Jan 2011. Her efforts have culminated into Stand4Lyme’s transformative Lyme research platform at Stanford, a “Lyme Moonshot.”


Sherry and her husband Laird established the Stand4Lyme Fund at the Stanford School of Medicine allowing for contributions to be specifically allocated to support the Stanford Lyme Working Group’s Lyme disease research program and collaborators. In addition, they initiated the LYME100 leaders to take a STAND pledging $50K. As an accomplished bronze sculpture artist, Sherry sculpted a noble bronze figure to encourage the advancement of Lyme research, in which with the LYME100 leaders are honored.


Sherry is a visionary, a patient advocate and facilitator, a voice and a driving force for the millions debilitated with Lyme disease. Lyme has taken a toll on three generations of her family and prematurely taken the life of one. Sherry is driven to accelerate a cure in the same manner she became a world champion equestrian – with unremitting discipline, persistence and a laser focus. As Sherry’s friend professed about her, “That tick bit the wrong chick™.” For herself, her daughters, her mother and others who continue to struggle with this persistent infectious disease; Sherry is actively dedicated to helping accelerate a cure, paving a path to wellness.


"There is no limit to what you can accomplish if you don't care who gets the credit."

Ronald Reagan




4/4/16

"Lyme Advocate of the Year"


Congratulations to Sherry Cagan for winning ProHealth's 2015 Lyme Advocate of the Year Award! The award is given to an advocate who has dedicated him or herself to furthering the interests of the Lyme community, and who has made a significant impact on public awareness of the disease. ProHealth Advocates of the Year receive a ProHealth gift certificate of $500 and $1,000, which may be donated to the charity of the recipient's choice.


Sherry Cagan is a patient advocate and facilitator whose voice has been a driving force for the millions debilitated with Lyme disease. In 2015, Sherry and her husband launched a 501(c)(3) non-profit organization based in Silicon Valley, Stand4Lyme Foundation, joining forces with Stanford scientists, "Making Lyme History,” paving a medical path to wellness for patients at all stages of Lyme disease, with the goal to end unnecessary prolonged suffering of millions. Through Stand4Lyme Foundation's partnership with the Stanford School of Medicine they are able to leverage Stanford’s proven track record of translating scientific discovery into solutions for patients with complex diseases. Through direct contributions to the Stanford/Stand4Lyme Fund, donors have the opportunity to bring Lyme disease research and development into the 21st Century.

Stand4Lyme has an initial goal to raise $5 million, which will fund for five years the Stanford Lyme Disease Working Group, which the Cagans worked to initiate. As this fund grows, it will significantly increase the intellectual and scientific power of the Stanford Lyme Working Group, which engages two-dozen esteemed scientists in over ten different disciplines and departments, as well as collaborating with other leading institutions, such as Harvard, Johns Hopkins and Columbia. This collaboration holds great potential to bring a cure.

Since 2011, Sherry has helped raise $1.5 million to find a cure for Lyme disease. Sherry will be hosting her fourth benefit for Lyme disease, Catalyst 4 The Cure Concert, on May 22nd at her home in Silicon Valley, featuring KC and the Sunshine Band, and Yolanda Hadid, Chynna Phillips and Billy Baldwin as Honorary Chairs. Guests will have a rare opportunity to talk with many of the world’s top scholars and researchers about their scientific insights on Lyme disease. The concert will bring together 400 guests from around the world, including executives from Fortune 500 and pharmaceutical companies, some of Silicon Valley’s most dynamic business and community leaders, athletes, and venture capitalists. Also taking a STAND are supporting organizations, along with individuals and families with Lyme disease. Stand4Lyme is also initiating the LYME100® leaders program for donors who take a supportive STAND by pledging $10,000 or more per year for five years to invest in solutions. For herself, her daughters, her mother, and the millions who continue to struggle with this persistent infectious disease; Sherry is actively dedicated to helping accelerate a cure and “making Lyme history.”

Read the interview below to find out more about Sherry.
____________________

Why did you found the Stand4Lyme Foundation, and what do you hope it will accomplish?

My husband, Laird, and I founded the Stand4Lyme Foundation to expedite a cure for Lyme disease, which has been woefully underfunded worldwide. We are highly motivated, as not only have I been continuously struggling with lingering symptoms and side effects after treatment for Lyme disease, but both our daughters are also presently undergoing extensive IV Lyme treatment. And there are millions that remain debilitated with no medical options. This is unacceptable, Lyme is a fixable problem, but not without our help. I am dedicated to accelerating a cure for Lyme disease.

What is your personal history with Lyme disease?

A tick bit me in 2005, but as a friend said, “That Tick Bit the Wrong Chick.” I have continued to struggle for a decade. I do hope to draw from my own near-death experience with Lyme disease as a catalyst to accelerate a reliable diagnostic test and a cure, paving a medical path to wellness for patients at all stages of Lyme disease, and “Making Lyme History.”

I became violently ill after being bit, but I was told I was not at risk for Lyme in CA, which we now know is not true after Stanford conducted a tick study in the Bay Area. After one health crisis after another, I saw about 50 doctors, being misdiagnosed with everything from MS to cancer before the DNA of the Lyme-causing bacterium, Borrelia burgdorfori, was found with a positive PCR test. I found myself in the ER going into shock before I started treatment, because I did not believe a tick could make me that sick. (I am a country girl and grew up around livestock.) Long-term treatment was against my belief, but when I stopped, I began heading toward a wheelchair. I wound up staying on antibiotic treatment for years, seven months of which was IV. Before beginning treatment I was a shadow of my former self, dropping down to 93 lbs. But thank goodness my body responded, and after taking an additional year to recover from the treatment I was able to drive and get out again. It has been torment to watch the toll Lyme has taken on my daughters both physically and emotionally, but they are amazingly resilient, having strong spirits and incredible discipline.

How has your personal history motivated you to pursue charitable work?

Although there are few scientific answers and options available, we must make medical help available for all Lyme patients, not for just those who have the resources to bear the exorbitant out-of-pocket costs of treatments. This is unconscionable.

How can Lyme disease patients best be served by advocacy?

Advocacy helps to frame our struggles, and gives them purpose. Our struggles will not have gone in vain if we can help prevent the suffering of even one other person or family from going through what we have had to endure. I encourage others to take a STAND, as we need everyone’s strengths.

Have you recovered from Lyme disease? To what do you attribute your recovery?

Unfortunately, Lyme disease is something I have had to continually manage. Though I am grateful to function at about 75% of my old self, I do not have to look far to see that things can be worse. No fooling, Lyme is not for wussies! Though with treatment I have improved, the current therapeutics do not come without their own host of problems. We must accelerate better solutions. But for now, to stay functioning, I do everything I can to support my immune system and avoid all that may burden it. I do have to go back on antibiotics occasionally to keep the bacterium under control and the symptoms at bay. I have had to adjust my lifestyle, which in many ways is a good thing; it helps keep my focus on what is important.





SHERRY CAGAN

January 2015

San Francisco Bay Area, CA

Infected: 2005

Diagnosed: 2011

Current health: Much improved, however still requires occasional treatments

My Lyme Story


My universe shrunk. Lyme disease stole my freedom. -Sherry Cagan

Below, Bay Area Lyme Foundation co-founder SherryCagan shares the challenges of her ten-year battle with Lyme disease, her conviction to find better answers so that others don’t have to suffer, and her commitment to helping dispel some of the myths surrounding this little-understood disease.

For the past ten years, I’ve been battling a mysterious illness, one we now know to be Lyme disease. I have felt much like I had a major hangover and been hit by a car all on the same day … and that’s putting it mildly! But as of December 2013, I am finally back in the saddle again after a long absence from debilitating Lyme symptoms. Being a World Champion Equestrian, I am determined to share with my two girls my love of the magnificent cutting horse and to teach them how to over come adversity like long-term family illness and the importance of working hard, being prepared, and going for your dream!

During the 1980s and 1990s I was a consistent finalist at the World Championship Futurity and other National Cutting Horse Association (NCHA) events. I won many championships, including a World Title, on horses bred and trained by family and I on our farm in Kentucky. Many of these horses were sired by the legendary Gun Smokes Pistol, our family stud and father of Gunsmokes Wimpy, a two-time World Champion. The horses from my family’s farm have collectively won over $4,000,000.

Finally beginning to feel liberated from Lyme and up and riding again, I am especially happy about having won “Reserve Champion” last February 2014 at the Bonanza in Texas and making the finals at the Derby in July. I won $30K in 2014 towards my lifetime show earnings and have now won nearly $500K, which is the required amount to be inducted into the Hall ofFame. I am currently back on Lyme treatment after a mild set back but have my eye on the goal.

Equally challenging this last year was having my beautiful 16-year old daughter also diagnosed with Lyme disease. She is doing well inspite of adversity. She has had many health challenges over the years. And like me, she was long misdiagnosed before we discovered the DNA of the Lyme-causing bacterium in her blood this past spring — after two prior false negative results with the unreliable standard CDC Lyme test! In the five months since she has been on treatment for Lyme, she has made a substantial improvement but the present treatment does not come without its own host of problems, nor is it a cure.

It is hard to see your child go through difficulty. I am proud to report that my daughter is a courageous and positive young girl and some peace has come as she has turned the corner. I have since learned aboutthe enormous number of children who are misdiagnosed as autistic when in fact it is the Lyme bacterium in the brain, often passed in utero, causing similar symptoms and the misdiagnosis. I am now even more dedicated to finding a cure for Lyme.

Health Crisis

A small tick bite in 2005 saw my world shatter. I had strange unrelated symptoms that ranged from piercing body pain and numbness to blackouts, difficulty breathing, and coughing, and finally manifested as full central nervous system dysfunction. Over the next five years, I had a number of ER visits due to recurring body rashes, anaphylaxis reactions, shingles, and what felt like a heart attack. For months, holding on by a thread with Meningitis and encephalitis, it left its mark. I saw approximately 50 doctors. Each declared there was no Lyme disease in California and subsequently misdiagnosed me. During this time, I was diagnosed with everything from MS to cancer and it was recommended that I have a hip replacement along with a number of other surgeries I fortunately opted to forgo.

Unfortunately, this lack of knowledge in the medical community allowed the Lyme spirochete bacterium (Borrelia burgdorferi) to progress throughout my body and grow to its persistent, crippling late-stage,from which there is no definitive cure. By the time we discovered I had Lyme disease, it was nearly too late. I found myself going into shock in the ER witha systemic MRSA staph infection and nearly lost my life in the spring of 2011. My depleted immune system was failing from the high levels of the Lyme disease bacterium and other co-infections.

From a strong-willed, physically fit athlete and world champion equestrian, I now found myself a sickly 93 pounds — a mere shadow of my former self. My universe shrunk. Lyme stole my freedom. I was isolated, notable to get out much or feel well enough to see visitors. And certainly not well enough to do my work as a sculptor. I had to decline all commissioned work due to my illness. After 2007, it simply became impossible to work. In addition, medical bills from Lyme are exorbitant and not covered by insurance.We spent well over $250,000 out-of-pocket seeking medical help the last tenyears.

I suffered one health crisis after another … all after being bitten by a tick. As a country girl who has been raised around livestock on a farm and having been exposed to insects my whole life, I simply could notbelieve a bug could make me that sick. It wasn’t till I saw the scan, which —due to the Lyme infection in my brain looked like I had experienced a stroke —that I realized this was my ironic reality.

A Path to Recovery –With Some Success but Not Enough

Finally after five years of suffering from a non-stop series of weird symptoms, I was properly diagnosed in 2011, confirmed by a positive PCR test for Lyme disease, detecting Borrelia burgdorferi (the spirochete Lymebacterium, similar to syphilis). I was lucky to receive the positive PCR as it is highly accurate when positive however produces a lot of false negatives. It’s not easy getting tested for Lyme. I had to insist on getting the Lyme testfrom my resistant physician after exhausting every other scan and test known to medicine.

I was finally referred to a Lyme literate doctor who had seen thousands of Lyme patients. I then went through two years of very aggressive treatments, including seven months of multiple IV antibiotics, several hours a day. (Unfortunately in my late-stage condition, the standard Lyme treatment guidelines of one month of antibiotics was insufficient, much like spitting on a fire.) Even after such a lengthy treatment to relieve my symptoms, it still took an additional year to recover. Much of the time I felt I could no longer continue treatment because the die-off from the bacteria seemed to make me sicker. It was nearly unbearable. In these dark moments my husband reminded me, ‘What choice do you have?’ As I was rapidly headed for a wheel chair, I am grateful for his support and courage.

There is light at the end of the tunnel. After the sixth month of IV, I began to feel a substantial relief in the symptoms. I have relapsed a few times and need to continue ongoing post treatment therapies to maintain my ability to function. Although compromised physically, I’m fortunate to be strong-minded. To avoid further complications and anything that burdens your immune system, one must be extremely self- disciplined and diligent. It’s a constant battle to keep the bacterial levels down to minimize symptoms and virtually a full time job keeping up with all the various therapies needed to assist one’s impaired system from the damage of the Lyme bacterium.

My health is unpredictable so it’s hard to make plans with my family. I must choose wisely, for I don’t have the stamina I used to. But, I now appear to operate more normally: I am back to driving a car, walking to the mailbox, etc. (Ah, the simple things we take for granted!) I still have health set backs and many challenging days. On my good days, I probably operate at around 80% of my former self.

As anyone who has ever been chronically ill knows, diseases of this nature impact more than the afflicted. Its agonizing tentacles have affected my whole family. My children not only felt the fear of possibly losing their mother but also spent way too much time alone because I was too sick to care for them as I normally would. My husband has held strong, being my “rock.”However, I do know how scared he was, and how hard it was for him to carry my load for years whilst I was at my worse.

Every breath is a blessing! A good attitude, a laugh, and hope help. As they say “in sickness and in health,” I am lucky to have a good husband, and friends with a good sense of humor. All our animals are a joy and comfort here on our little green acres at Mt. Cagan. I am pleased to know some of my sculpture work — including a monumental life-size bronze sculpture entitled “Horse in Motion” depicting the Muybridge study — is prominently displayed at Stanford University and a life-size piece of my children playing entitled “Joyous Blessing” is at Portola Valley Town Center. There are also other life-size pieces at private estates, including here at home. I also now enjoy watching my two daughters work, as they have now found their own creative gifts as artists.

I am so grateful for having good family and friends who have helped me through such challenging times. I know so many other Lyme patients suffer alone, as their families and friends do not understand this very complicated mysterious illness we call Lyme disease and the related symptoms, as one can look perfectly normal on the outside while Lyme bacteria is wreaking havoc inside. I really live a blessed life with my family and our menagerie of critters. I must stay healthy to enjoy it all.


Educating and HelpingOthers with Lyme

I am turning my devastating ten-year battle with Lyme disease into positive territory. With the help of my husband and four members of our community, the six of us co-founded the Bay Area Lyme Foundation, a science-focused 501(c)3 non-profit organization located in California‘s SiliconValley, which opened its doors at the beginning of 2012.

In a ten-year search for answers, I’ve spent endless hours researching the disease. My appetite for information led me to attend numerous medical and clinical Lyme disease conferences. I read dozens of books and have reached out to nearly every Lyme expert around the world to educate myself on Lyme, available treatments, and ways nutrition and healthy habits can help support my immune system. I should have my PhD by now! I know just how bewildering and uncharted the Lyme disease frontier is. If I had been given accurate information when I was first bitten, or received treatment right away, much of what I endured could have been prevented. It is unacceptable that patients must wade through the challenges of finding appropriate medical care. My wish is that others are comforted by hope as we work to find a cure.

I am standing up to Lyme disease. Regardless of whether I am under treatment or hooked up to an IV pole and/or no matter howsick I feel, I am determined to bring the most brilliant minds together to tackle this problem. We will find the right path through interdisciplinary scientific research and collaborative efforts with world-class entities. We need reliable testing, effective treatments, and a cure. Philanthropic support, strong due diligence, and strategic planning will insure solutions.

The Bay Area Lyme Foundation (BAL)-funded research projects at Stanford and prior I met with a number of scientists, heads of departments, and the Dean of the prestigious Stanford University Medical School. As a result, we are pleased that Stanford established the Stanford Lyme Working Group, the first interdisciplinary collaborative working group focused on Lyme in the country, led by more than 2-dozen esteemed scientists and co-chaired by two faculty chair persons (pictured above). They have convened to explore the many areas relevant to Lyme and related tick- borne diseases: neurology, immunology, infectious disease, pain management, bioinformatics, psychiatry, and psychology. It is likely that these collaborative efforts will not only uncover answers about Lyme, but may impact many other related diseases, such as Alzheimer’s, autism, and MS. Results from one BAL - funded ecological study also proved there is indeed Lyme disease in California along with other strains and co- infections. Co-Chair Dr. Mark Davis has stated: “We at Stanford will do our best to make Lyme history.”

I created and chaired the first three LymeAid events, the Bay Area Lyme Foundation’s annual celebrity benefit dinner dance concert, which my husband Laird and I hosted at our home in Silicon Valley. This exclusive and intimate “Evening of Discovery and Hope” informs, engages, and inspires. At the Spring 2013 premier event, we raised nearly $500K and brought together some of the nations leading scientists, physicians and ecologists as well as many of Silicon valley’s most dynamic business minds and philanthropists around the world in a setting with panoramic views of San Francisco and the Stanford foothills and Felt Lake. The event featured Daryl Hall from Hall & Oates, who is also living with the challenges of Lyme disease. LymeAid 2014 featured The English Beat and raised another $500K. LymeAid 2015 features Huey Lewis & the News live in Concert.

We have also held other events to raise awareness and funds. Presented at LymeAid is the Emerging Leader Award, a $100K Grant, commemorated with a bronze sculpture, I presented and sculpted with the purpose of encouraging scientists and supporters to put their efforts towards solutions for Lyme.

Lyme disease is one of the fastest growing infectious diseases, yet there is little NIH funding. There is urgency for answers; the misfortune of misdiagnosis is unacceptable. There are also a number of popular misconceptions. For example, mice and grey squirrels are the primaryLyme bacterium carriers here in northern California (not deer) and not all will present a bullseye rash when bitten (many never even get a skin rash at all, contrary to what one might read). In fact, nymph ticks — as small as a poppy seed — can bite and be gone without one ever knowing they have been bitten.

Though the CDC reported in August, 2013 that there are 300,000 new cases of Lyme disease each year — 10 times more cases reported than previously thought — most people do not know enough about the disease. Thepublic generally does not hear about the millions who didn’t receive early treatment, don’t respond to treatment, or cannot find or afford help and thengo on to suffer debilitating chronic pain, or even death.

It is heartbreaking that many Lyme patients live in silent despair. Discovering people in wheel chairs who have lost their jobs, homes, and families after contracting Lyme and learning of the millions who still remain ill and highly debilitated with this silent peril is what drives me to take action. It is also why we started the Bay Area Lyme Foundation.

Onward

Along with the love and support of my family and friends, I keep going by focusing on my three big goals: not missing a moment with my beautiful daughters and wonderful husband, being inducted to the Hall of Fame,and helping others who find themselves suddenly facing this bewildering no man’s land they call Lyme disease. A bit of winning on all fronts will be icing on the cake.

And as a good friend of mine remarked, “That tick bit the wrong chick!”

If Only I Had Known …

If I had been given accurate information when I was first bit, and gotten treatment right away, much of what I endured could have been prevented.


If I had been educated on the fundamentals of the bacteria itself early on, I believe it would have helped me understand why my body seemed to be deteriorating. Understanding what this sophisticated spirochete is capable of and how it operates does help make sense of the weird effects it has on the body and symptoms that are produced.

I have thought a lot about what I now know about Lyme disease but wish I had known when I was first bitten:

· that I was at risk of Lyme disease here in California (contrary to what most believe, Lyme is present throughout the state and particularly in the coastal regions of Northern California) and the infected rate is increasing.

· how important it is to be treated right away at the onset of the infection (where one month of easily available and inexpensive antibiotics would have most likely eliminated more than 10 years of suffering and frustration, and expensive, ineffective late-stage treatments!)

· that sudden fever and dizziness are important telltale clues – though the symptoms often mimic those of the flu, what sets Lyme apart is the suddenness of the fever and the severe dizziness

· that Borrelia burgdorferi is one of the most sophisticated bacterias on earth, capable of evading the immune system and treatments, drilling through the body like a corkscrew causing degeneration and debilitation (and excruciating pain and impairment!)

· that my doctors might not have all the answers and that I would need to push and advocate for myself (so many times I was told that I was “treated” -- that there was “nothing wrong with me,” and nothing more they could do even though I limped for years and could barely breathe)

· how important it would be for me to come to terms with the reality of my conditionand the severity of my symptoms so that I could accept the necessary lifestyle change and commit to the required maintenance to keep the bacteria under control and regain my health (to not be in denial and to be willing to open my mind to the uncertainty of longer treatments, especially despite a strong personal predisposition to steer away from such prognoses)

In the end, I did not actively make the treatment decision —a near-death experience forced my hand into taking treatment. And I have had to embrace more continuous treatments (but proof’s in the pudding, I no longer have pain and am riding again!). I have had to become more patient with myself, allowing time to steadily recover and not getting discouraged by relapses, which now seem minor in comparison. When uncertain I think about my alternatives— wheel chair or saddle? And I know which I choose.

Lyme disease is a painful struggle, more so for the many who don’t receive the support they need from care takers, clinicians, or friends and family members. My own Aunt Nell suffered for years and ultimately lost her life prematurely from Lyme disease while my family and I often dismissed her symptoms and believed her to be a hypochondriac. People need to be educated and develop an understanding of what Lyme disease patients are experiencing. Lyme disease is a long-term,frustrating battle with uncertainty, ambiguity, and confusion. It is easy to get discouraged and for support teams to grow weary of it all. It is unacceptable that patients must wade through the bewildering challenges of finding appropriate medical care. We need reliable testing, effective treatments, accurate information, and ultimately, a cure.


My greatest wish is for there to be more of a medical path to wellness, where patients and caretakers know what to expect and what to do at all stages of the disease, and that there be clearer answers and better treatments available to all.

I will not give up until the solutions are found… As Co-Founder Bay Area Lyme Foundation and LymeAid Chair, we will “make Lyme disease easy to diagnose and simple to cure”.

“That tick bit the wrong chick!”




AUGUST 2015


Life has been a bit of a challenging for our family health wise, particularly this summer 2015, as to our dismay; both of our daughters are now on treatment for Lyme disease. Of coarse, I have asked myself, how is this possible. It has been a bewildering long journey navigating our way through unanswered questions for our children’s failing health, as well as trying to maintain my own ability to function the last 10 years. My personal struggles with Lyme disease have had a devastating impact on me and our family, but there is no agony like hooking your child up to an IV everyday wondering how long will it sustain them and or effect them long term, with no definitive cure in sight, it is heartbreaking and scary.

I have been pulling many all nighters to launch a new foundation to expedite answers for my children and me and many others. Stand4Lyme Foundation has receiving a tremendous amount of support from institutions like Stanford School of Medicine, scientists, physicians, leaders and Lyme patients from around the world. We feel confident this is a platform the world can stand united behind to accelerate a cure.

I am proud to have helped found Bay Area Lyme Foundation and to have been heavily involved from 2011 to 2015. In addition, to have created, chaired and hosted the first three LymeAid benefits for research and awareness at our home in Silicon Valley. We trust BAL will continue to do good work, however, my husband, Laird and I have resigned from the Bay Area Lyme Foundation as of August 2015 and are continueing with the work we began prior at Stanford.


November 2015

Laird and I have launched Stand4Lyme Foundation to focus our philanthropic efforts at Stanford University and have established the Stand4Lyme Fund at Stanford. Through direct contributions to Stanford, donors have an exciting opportunity to partner with an interdisciplinary, collaborative collection of brilliant minds who share a sense of urgency to accelerate cutting-edge research in Lyme disease. The world can stand united behind this revolutionary platform and exceptional and unique program at Stanford, which includes collaborations at other leading institutions and holds great promise to solve the puzzles that may one day bring a cure.

I nearly lost my life to Lyme in 2011 and Lyme disease has stolen both of my daughters’ youth. Laird and I will not stand by while it steals their young adulthood and is possibly passed on to their children. We stand up to the challenge of finding answers for our family and the millions who remain debilitated, directing our efforts to the collective knowledge and science of some of the world’s leading scientists at Stanford to expedite a potential curative treatment for Lyme disease. Please stand united and partner in “Paving a Medical Path to Wellness for Lyme Disease."


We are honored to have the support of Stand4Lyme. Its founders Sherry and Laird Cagan have been steady supporters of Stanford University and have been instrumental in helping advance national research for Lyme disease. In their personal quest for a curative treatment, and as catalysts for the creation of the Stanford Lyme Working Group, they inspire us to accelerate medical advancements to make Lyme disease history.

- Mark Davis, PhD, and Laura Roberts, MD, MA Co-leaders, Stanford Lyme Working Group.

Stanford Lyme Working Group

https://med.stanford.edu/psychiatry/about_us/special-initiatives/lyme.html





May 2016


Campaign kickoff: Stand4Lyme Catalyst 4 The Cure Concert, an exclusive event

featuring KC and the Sunshine Band.


Honoring LYME100 Leaders Taking a Stand "Investing in Solutions"

pledging $10k or more for 5 years.

Stand4Lyme Foundation

www.Stand4Lyme.org

Stand4Lyme Foundation President/Founder, Sherry Cagan Sherry@Stand4Lyme.org


"May illness not define us, but liberate us to live"

Sherry Cagan